I could hear her crying in the background wanting me as I talked to my husband on the phone as he was on his way home…it was our daughter- she was sick, very sick we just didn’t realize how sick she was until later – much later. This is the story of how our lives were changed forever and how our experience can help you.
What started out as a virus turned into a nightmare. Our daughter not only got physically sick her personality changed in an instant. She went from being an energetic happy little girl to one who would worry about little insignificant things and she would cry for hours on end and have sometimes violent meltdowns over something as simple as saying a normal word in a conversation or worrying about lights hurting her eyes or loud noises hurting her ears.
The irrational fears would change so you never knew what would set her off and cause her to start crying anywhere from 30 minutes to 3 hours or longer.
What was it? Her pediatrician didn’t know and neither did alternative doctors it took taking her to a psychiatrist to finally get a diagnosis 2 years later. It was PANDAS/PANS which stands for Pediatric Autoimmune neuropsychiatric disorder associated with Strep or Pediatric Auto Onset Neuropsychiatric Syndrome. In laymen’s terms it’s a form of Obsessive Compulsive Disorder (OCD), a terrible form of OCD.
What I learned from going through this changed my life. It changed all of our lives, and now I want to help others to know that there are answers out there other than traditional medicine. You just have to know where to look.
The most important thing is to NEVER give up as long as there is life there is hope. And there is a reason for everything.
You can the book, THE MISDIAGNOSED LIFE at amazon: